Introduction vi How This Book Helps Patients and Families ix How to Use This Book x 1 The Staff . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1 The Nurses 1 The Doctors 2 The Nurse Practitioners and Physician Assistants 4 The Respiratory Therapists 4 The Pharmacists 5 The Physical and Occupational Therapists 5 The Speech- Language Pathologists 5 The Social Workers and Case Managers 6 The Ethics Committee/Ethicists 6 The Nurse Aides 6 Other Vital Staff Who May Be Regularly Seen in the ICU 7 2 A Typical Day . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 8 The Most Important Part of the Day to Be at the Bedside 8 The Schedule for the Day 9 The Staff Shift Change 10 3 The Basics . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 11 Why the ICU 11 Admission Into the ICU 12 Monitoring the Patient 13 Intravenous Access 14 Medication Pumps 16 Computers and Electronic Medical Records 17 Prefer Another Language 17 Visiting the Patient 17 Preventing Infection 18 Transfer Out of the ICU 20 4 Common Procedures . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 21 Informed Consent—Explaining All the Options 21 Questions to Ask for Informed Consent 22 Capacity—Can the Patient Make Their Own Decisions 23 Arterial Line 25 Blood Transfusion 26 Bronchoscopy 28 Central Line 29 Chest Tube 31 Esophagogastroduodenoscopy (EGD) 32 Feeding Tube for the Short Term—Nasogastric (NG), Orogastric (OG), and Nasoduodenal (ND) Tubes 34 Feeding Tube for the Long Term—Percutaneous Endoscopic Gastrostomy (PEG) and Gastrostomy/Jejunostomy (G/J) Tubes 36 ContentsPeripherally Inserted Central Catheter (PICC) 38 Pulmonary Artery Catheter 39 Swallow Test 41 Tracheostomy 42 Urinary Catheter 44 Sterile Precautions 46 5 Medications . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 47 Medication Timing 48 Pain 49 Managing Pain Without Medicine 51 Pain Medicine 52 Patient- Controlled Analgesia: Patient- Controlled Pain Medicine 54 Vasoactive Medications: Controlling Blood Pressure 55 Sedation: Calming the Patient 56 Mild Sedation: Reducing Anxiety 56 Moderate Sedation: Relaxing the Patient During a Procedure 57 Deep Sedation: Relaxation During Extended Therapy 57 Paralytic: Preventing Patients From Working Against Themselves 59 6 Lab Tests . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 61 What the Labs Can Tell About the Patient 62 Illnesses and Their Labs 62 Bleeding 62 Infection 63 Kidney Injury 64 Liver Injury 64 Heart Injury 64 Diabetes 65 Other Labs 65 7 Possible Side Effects of the ICU . . . . . . . . . . . . . . . . . . . . . . . . 66 Delirium: When the Patient Becomes Confused 66 Restraints: Restraining Movement for Safety 69 Pressure Injuries: Skin Breakdown From Pressure 72 8 Therapies for Common Issues . . . . . . . . . . . . . . . . . . . . . . . . . 74 Cooling the Patient 74 Warming the Patient 75 Hemodialysis and Continuous Renal Replacement Therapy 75 Basics About Breathing 78 First Steps to Improve Breathing 79 A Non-Rebreather Mask: Quick Increase in Oxygen Levels 80 Continuous Positive Airway Pressure (CPAP) and Bilevel Positive Airway Pressure (BiPAP): Aid for Sleep Apnea or High-Level Help for Breathing Difficulty 81 High-Flow Nasal Cannula: High-Level Help for Breathing Difficulty 83 The Ventilator: Total Help Breathing 84 Respiratory Distress and Respiratory Failure: When Trouble Breathing Turns Into Needing a Breathing Tube 86 Intubation: Inserting the Breathing Tube 86 9 Essentials for the ICU Patient . . . . . . . . . . . . . . . . . . . . . . . . . 89 Feeding: Providing Nutrition to Help Recovery 90Sedation: Relaxation During Extended Therapy 92 Thromboembolic Prevention: Preventing Blood Clots 93 Head of Bed Elevation: Preventing Lung Infections 95 Ulcer Prevention: Preventing Stomach Damage 96 Glucose Control: Managing Blood Sugar 96 Spontaneous Breathing Trial: Testing if the Breathing Tube Can Be Removed 97 Bowel Regimen: Promoting Bowel Movements 97 Indwelling Catheter Removal: Preventing Infection of Lines 98 De-escalation of Antibiotics: Targeting the Infection 98 The “Get to Know Me” Board: Helping Everyone Know the Patient 98 ICU Journal: Better Insight for Now and Later 99 Extubation: Removing the Breathing Tube 100 Early Mobility: Exercising ASAP 100 10 How to Help the Patient During Downtime . . . . . . . . . . . . . . 102 1 1 How to Prepare Now for a Better Life After Hospitalization . . . 105 Preventing and Overcoming Post- Intensive Care Syndrome 108 1 2 Where the Patient Recovers After the Hospital . . . . . . . . . . . 112 Long-Term Acute Care Hospital 113 Inpatient Rehabilitation Facility 113 Skilled Nursing Facility 113 Home Health 113 Outpatient Rehabilitation 113 Questions to Ask the ICU Team About Leaving the Hospital 114 1 3 Common Concerns and Helpful Tips . . . . . . . . . . . . . . . . . . . 116 What to Bring to the Hospital and What to Leave at Home 116 How to Make the ICU Stay More Comfortable 117 How to Communicate With the ICU Team 118 Not Allowed to Eat or Drink—Nil Per Os (NPO) 120 Unable to Visit the Patient 120 Strategies for Reducing the Costs of Treatment 122 Questions to Ask When Making a Decision 123 Second Opinion 125 Full Code and Do Not Attempt Resuscitation 126 What Happens if the Heart Stops for a Full Code Patient (Code Blue) 127 What Happens After Surviving a Code Blue 128 What Happens if a Patient May Be Having a Stroke (Code Stroke) 129 The Most Serious Types of Brain Injury 131 A Quick Guide to Organ Donation 133 1 4 Critical Questions That Determine the Right Care . . . . . . . . . 135 Goals of Care 135 Advance Care Planning 136 Durable Power of Attorney 137 Responsibilities When Making Decisions for the Patient 138 Living Will 139 Goal of Living Until Death 142 A Story of the Importance of Advance Care Planning 144 Physician Orders for Life- Sustaining Treatment (POLST or Medical OLST) 146 Helpful Online Resources to Organize Thoughts 146 If the Patient Cannot Respond, and the Family Does Not Know 1 5 Important Topics When Discussing the End of the Patient’s Life . . . . . . . . . . . . . . . . . . . . . . . . . 149 If More Time Is Needed to Decide About the Right Path for the Patient 151 Comfort Care: A Focus on Patient Comfort as Death Nears 152 Glossary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 155 Appendix 1 – Helpful Tool for Organizing Patient Details or to Use During Rounds . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 163 Appendix 2 – Journal Outline . . . . . . . . . . . . . . . . . . . . . . . . . . . . 177 Appendix 3 – Get to Know Me Board . . . . . . . . . . . . . . . . . . . . . . 184 Appendix 4 – Questions to Ask When Making a Decision About Care . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 185 Figure Credits 186 Index 189
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